A video series of a daughter's journey shows her story of diagnosis through death and how a terminal disease changes everyone, not only...

Remember the fun and exhilarating feeling of doing something first as a child? I can still remember the first time I heard my brother...

It has been a joke with my family that I came out of the womb talking. I am a people person and someone who could have a conversation...

Join me on making a rare recipe on Rare Disease Day! I will be making Ton's Sauce and remembering Ton and all those with that took fare...

Lately, I've been reflexing back on the holidays as Thor and Ashton's birthdays are quickly approaching, and came to a realization around...