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Meet Sabrina

ALS Advocate, Ambassador, and Mentor

Hi!

 I am a mother of two from a suburb of Chicago who spent far too many of my teenage years being stubborn and needing the last word in an argument with my dad. When he passed away from ALS in 2019, it sparked a fire in my heart to turn that stubbornness into advocating for patients and families with the disease.

I know firsthand how three little letters can turn your entire world upside down and that a terminal disease does not just affect the person diagnosed.

His voice stopped so mine could start. In time my voice has become louder, and my reason greater to continue this fight in his honor.

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DID YOU KNOW I WAS A PUBLISHED AUTHOR?

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Monster Truck Moe and Little T the Tow Truck had a bond like no other, like Sabrina Johnson’s real life son and father.

Sabrina Johnson lost her father to a sporadic case of ALS. He was not supposed to rust early, but just like his character in the story, the parts that he was born with unfortunately deteriorated. There is nothing that Moe could have done differently to stop the rust or his ALS diagnosis, but what can be done differently is how people react to those who might look a little different than the people we see in our own homes.

In both the story and real life, Little T never noticed the rust nor cared when his Papa went from walking with his legs to rolling down the street in his motorized wheelchair.

What matters is the love, moments, and joy you bring to those around you. Different is beautiful. Kindness is beautiful. Spreading awareness to help those who rust a little sooner than expected is gorgeous.

Little T’s first-grade class were the illustrators of this book

Two ALS organizations were created because they or someone they love started to rust. Instead of covering it up, they showed the world how to come together to support the beauty of the rusty cars, their families, and all the junkyards worldwide. A portion of each book sold will also be donated to I AM ALS and HOPE LOVES COMPANY.

Understanding ALS terminology is frustrating. UNDERSTANDING ALS FROM THE “AVERAGE TON” is a guide written by the daughter of an ALS Warrior, Ton, who uses his Chicago accent and way with words to help break down the disease in a way the “average” person can understand.

10% of yearly sales will be donated to an ALS Organization on July 22nd in honor of Ton's Birthday

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My Passions Include

ALS

AWARENESS

ALLOWING 

OTHERS

TO KNOW

RESOURCES

THE IMPORTANCE OF YOUR STORY

CAREGIVER SUPPORT

VETERAN

RESOURCES

Let's Connect

  • Facebook
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  • LinkedIn

DONATING TO SABRINA JOHNSON ADVOCATE LLC

I started Sabrina Johnson Advocate LLC in hopes that one day as someone was googling the night that their loved one was diagnosed with ALS that they would come across this website and know they were not alone. Becoming an ALS Advocate, Mentor, and Consultant has sparked a fire in my heart, and I enjoy every step of being able to take my story and use that to help others.

Ton’s voice stopped so that mine could start. I know firsthand the financial strain of ALS has on a family, and it has been a mission of mine to never ask a family for payment for any services I may offer.

I also know that some people’s love language is to give, and I want to offer a safe place for people to donate to Sabrina Johnson Advocate LLC.

Whether you donate monetarily, share my website, or spread awareness about ALS itself, I thank you.

Together, we will live in a world where three little letters will not have such a significant impact on a family one day.

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SABRINA JOHNSON ADVOCATE LLC

ILLINOIS LLC

FORMED UNDER THE LAWS IN THE STATE OF ILLINOIS

Sabrina Johnson, the Founder and President of Sabrina Johnson Advocate, LLC is intended for educational and informative purposes only and is not intended to serve as medical or professional advice.  The information provided is for general informational and educational purposes only and is not a substitute for professional advice.

 

Accordingly, before taking any actions based upon such information, Sabrina Johnson Advocate, LLC encourages you to consult with the appropriate professionals.

If you have any concerns or questions about your health, you should always consult with a physician or other healthcare professional. Do not disregard, avoid or delay obtaining medical or health-related advice from your healthcare professional because of something you may have read on any of Sabrina Johnson Advocate LLC forums. The use or reliance of any information created by Sabrina Johnson Advocate LLC is solely at your own risk.

If you are in the United States and think you have a medical or health emergency, call your health care professional, or 911, immediately.