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WORDS THAT ARE UNDERLINED WILL TAKE YOU TO A LINK FOR MORE INFORMATION

O

onset

When you first noticed a sign or symptom of the illness PRIOR to being diagnosed. (MANY Clinical Trials will ask you about your onset  time period)

Occupational Therapist (OT)

a healthcare professional that is a part of your Multidiciplinary Team who will help improve basic motor functions. They are also the professionals that will help you will adaptive equipment as well as how you can make modifications in your daily environment to be comfortable

P

pallidotomy 

a surgical procedure to improve symptoms of tremor, rigidity, and bradykinesia

palsy 

paralysis of a muscle or group of muscles

positron emission tomography (PET) scan 

an imagining technique that provides a picture of the brain's activity

primary lateral sclerosis (PLS) 

similar to ALS but this only affects the upper motor neurons. This is the RAREST form of ALS is while it still progresses, it does so slowly and is not typically fatal

progressive bulbar palsy (PBP)

a condition that begins with difficulties in speaking, chewing, and swallowing. This is due to the lower motor neuron cells deteriorating.

progressive muscular atrophy (PMA) 

Opposite of PLS. This one only affects the lower motor neuron. 

pseudobulbar palsy 

Similar to ALS but this primarily affects chewing, swallowing, and speaking. It also affects emotions with spontaneous or unmotivated crying and laughing

PALS

Person Diagnosed With ALS. A term used in the ALS Community often.

percutaneous endoscopic gastrostomy (PEG)

A feeding tube inserted into the stomach that allows for liquid nutrition and medication to be inserted when swallowing becomes difficult

physical therapist (PT)

a healthcare professional who is a part of your Multidiciplinary Team to assist with muscle function as well as assisting in stretching techniques

phenotype

refers to everything observable in a living organism. When related to ALS is will be describing how the disease is different between patients

proteomics

the proteins presented in a given tissue

Pseudobulbar Affect (PBA)

Uncontrollable laughing and crying. This occurs in 20-50% of ALS patients

Palliative Care

a medical specialty that aims to improve quality of life for people with terminal illnesses. The care focuses on pain management, as well as emotional, physical, and spiritual support for both patient and family.

Q