A video series of a daughter's journey shows her story of diagnosis through death and how a terminal disease changes everyone, not only...

I have always loved John Lennon’s quote, “Everything will be okay in the end. If it’s not okay, it’s not the end.” Something about it has...

What do you do when you find yourself in a situation where you find yourself parenting your parent? When my dad started to get sick, his...

Remember the fun and exhilarating feeling of doing something first as a child? I can still remember the first time I heard my brother...

It has been a joke with my family that I came out of the womb talking. I am a people person and someone who could have a conversation...

Join me on making a rare recipe on Rare Disease Day! I will be making Ton's Sauce and remembering Ton and all those with that took fare...

In August 2017, I experience my first panic attack. I have suffered from anxiety for as long as I can remember but never thought much...

Do you have a go-to outfit? You always seem to pick something for a special occasion, the shirt you know that fits, looks good, and you...

Unlike other diseases, no one test can determine if a person has or does not have ALS. You do not get to walk out of one doctor’s...

As I have started reflecting and sharing the wild ride of ALS, I thought I would share a life lesson that I walked away with that...

As Ashton’s second birthday approaches, I find myself reflecting and remembering those beginning feelings of pregnancy, terrified and not...

Lately, I've been reflexing back on the holidays as Thor and Ashton's birthdays are quickly approaching, and came to a realization around...

Grammar checkers, beware because this will be a place that will send you into a spiral. Consider this your warning and enjoy the show! I...