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A Daughter's Journey
Sabrina Johnson
  • Aug 28, 2021

A Daughter's Journey

A video series of a daughter's journey shows her story of diagnosis through death and how a terminal disease changes everyone, not only...
717- A Reason, A Purpose, A Reminder
Sabrina Johnson
  • Jul 16, 2021

717- A Reason, A Purpose, A Reminder

I have always loved John Lennon’s quote, “Everything will be okay in the end. If it’s not okay, it’s not the end.” Something about it has...
What do you do when you find yourself needing to parent your parent?
Sabrina Johnson
  • Jul 9, 2021

What do you do when you find yourself needing to parent your parent?

What do you do when you find yourself in a situation where you find yourself parenting your parent? When my dad started to get sick, his...
"your brokenness is welcome here" Jordan Lee Dooley
Sabrina Johnson
  • Mar 18, 2021

"your brokenness is welcome here" Jordan Lee Dooley

Remember the fun and exhilarating feeling of doing something first as a child? I can still remember the first time I heard my brother...
"This phase will end..."
Sabrina Johnson
  • Mar 11, 2021

"This phase will end..."

It has been a joke with my family that I came out of the womb talking. I am a people person and someone who could have a conversation...
Rare Disease and Rare Recipe Challenge
Sabrina Johnson
  • Feb 24, 2021

Rare Disease and Rare Recipe Challenge

Join me on making a rare recipe on Rare Disease Day! I will be making Ton's Sauce and remembering Ton and all those with that took fare...
Panic Attacks and Mantras
Sabrina Johnson
  • Feb 22, 2021

Panic Attacks and Mantras

In August 2017, I experience my first panic attack. I have suffered from anxiety for as long as I can remember but never thought much...
Life Moments and the Brown Sweater
Sabrina Johnson
  • Feb 16, 2021

Life Moments and the Brown Sweater

Do you have a go-to outfit? You always seem to pick something for a special occasion, the shirt you know that fits, looks good, and you...
A TikTok video helped me turn my anger into ambition...
Sabrina Johnson
  • Feb 13, 2021

A TikTok video helped me turn my anger into ambition...

Unlike other diseases, no one test can determine if a person has or does not have ALS. You do not get to walk out of one doctor’s...
Life Lesson: DO NOT WAIT
Sabrina Johnson
  • Feb 10, 2021

Life Lesson: DO NOT WAIT

As I have started reflecting and sharing the wild ride of ALS, I thought I would share a life lesson that I walked away with that...
From the desk of a mom reflecting on a pregnancy surrounded by ALS two years later
Sabrina Johnson
  • Feb 9, 2021

From the desk of a mom reflecting on a pregnancy surrounded by ALS two years later

As Ashton’s second birthday approaches, I find myself reflecting and remembering those beginning feelings of pregnancy, terrified and not...
Grief on the random days
Sabrina Johnson
  • Jan 29, 2021

Grief on the random days

Lately, I've been reflexing back on the holidays as Thor and Ashton's birthdays are quickly approaching, and came to a realization around...
Sabrina Johnson
  • Jan 22, 2021

If you are here for the correct grammar, you are in the wrong place #that'slife #ALSthoughts

Grammar checkers, beware because this will be a place that will send you into a spiral. Consider this your warning and enjoy the show! I...