A video series of a daughter's journey shows her story of diagnosis through death and how a terminal disease changes everyone, not only...

I have always loved John Lennon’s quote, “Everything will be okay in the end. If it’s not okay, it’s not the end.” Something about it has...

What do you do when you find yourself in a situation where you find yourself parenting your parent? When my dad started to get sick, his...

Remember the fun and exhilarating feeling of doing something first as a child? I can still remember the first time I heard my brother...

It has been a joke with my family that I came out of the womb talking. I am a people person and someone who could have a conversation...

Join me on making a rare recipe on Rare Disease Day! I will be making Ton's Sauce and remembering Ton and all those with that took fare...

August 2017, I experience my first panic attack. I have suffered with anxiety for as long as I can remember but never thought much about...

Do you have a go to outfit? Something that you seem to always pick for a special occasion, the shirt you know that fits, looks good, and...

Unlike other diseases there is not one test that can determine if a person has or does not have ALS. You do not get to walk out of one...

As I have started reflecting and sharing the wild ride of ALS, I thought I would share a life lesson that I walked away with that...

As Ashton’s second birthday starts to approach, I find myself reflecting back and remembering those beginning feelings of pregnancy,...

Lately I've been reflexing back on the holidays as Thor and Ashton's birthday are quickly approaching and came to a realization around...

Grammar checkers beware because this will be a place that will send you into a spiral. Consider this your warning and just enjoy the...