Sabrina JohnsonAug 28, 2021A Daughter's JourneyA video series of a daughter's journey shows her story of diagnosis through death and how a terminal disease changes everyone, not only...
Sabrina JohnsonJul 16, 2021717- A Reason, A Purpose, A ReminderI have always loved John Lennon’s quote, “Everything will be okay in the end. If it’s not okay, it’s not the end.” Something about it has...
Sabrina JohnsonJul 9, 2021What do you do when you find yourself needing to parent your parent?What do you do when you find yourself in a situation where you find yourself parenting your parent? When my dad started to get sick, his...
Sabrina JohnsonMar 18, 2021"your brokenness is welcome here" Jordan Lee DooleyRemember the fun and exhilarating feeling of doing something first as a child? I can still remember the first time I heard my brother...
Sabrina JohnsonMar 11, 2021"This phase will end..."It has been a joke with my family that I came out of the womb talking. I am a people person and someone who could have a conversation...
Sabrina JohnsonFeb 24, 2021Rare Disease and Rare Recipe Challenge Join me on making a rare recipe on Rare Disease Day! I will be making Ton's Sauce and remembering Ton and all those with that took fare...
Sabrina JohnsonFeb 22, 2021Panic Attacks and MantrasIn August 2017, I experience my first panic attack. I have suffered from anxiety for as long as I can remember but never thought much...
Sabrina JohnsonFeb 16, 2021Life Moments and the Brown SweaterDo you have a go-to outfit? You always seem to pick something for a special occasion, the shirt you know that fits, looks good, and you...
Sabrina JohnsonFeb 13, 2021A TikTok video helped me turn my anger into ambition...Unlike other diseases, no one test can determine if a person has or does not have ALS. You do not get to walk out of one doctor’s...
Sabrina JohnsonFeb 10, 2021Life Lesson: DO NOT WAITAs I have started reflecting and sharing the wild ride of ALS, I thought I would share a life lesson that I walked away with that...
Sabrina JohnsonFeb 9, 2021From the desk of a mom reflecting on a pregnancy surrounded by ALS two years laterAs Ashton’s second birthday approaches, I find myself reflecting and remembering those beginning feelings of pregnancy, terrified and not...
Sabrina JohnsonJan 31, 20212021, Connecting, ALS and moreI've made a lot of goals for myself for 2021, and none of them are the typical Pinterest-worthy goals. This year, my main goal is...
Sabrina JohnsonJan 29, 2021Grief on the random daysLately, I've been reflexing back on the holidays as Thor and Ashton's birthdays are quickly approaching, and came to a realization around...
Sabrina JohnsonJan 22, 2021If you are here for the correct grammar, you are in the wrong place #that'slife #ALSthoughts Grammar checkers, beware because this will be a place that will send you into a spiral. Consider this your warning and enjoy the show! I...