als | SJA

Self-Care

Self-care was a word that used to make me cringe. For a long time, I would be asked what I was doing for self-care and how I cared for...

Atlas of the Heart

I finally started Brené Brown’s Atlas of the Heart book today after far too long of hesitation. I was hesitant because I knew it would be...

The Caregiver's Dilemma

Last month, I had the privilege of chatting with Emilia Bourland, OTR, ECHM. If you are in the caregiving role or will be, I cannot...

Rare Patient Voice

Rare Patient Voice allows patients and caregivers to get paid to use their voices and change the future simultaneously! They know the...

HUNGRYROOT

A friend recently told me about Hungry Root, and I am excited to save some time thinking out a couple of meals and some groceries. Make...

4 Years Later. November 2017-Novemeber 2021

Life changes, people change, and the world is forever moving. A concept that seems so easy to understand until you find yourself in a...

Remembering Your Roots

When you are a child having a last name with eight letters is a burden. The repetition of repeating it, spelling it, and correcting...

30, Flirty and Thriving? More like 30..depressed and a mess

Ever since I was little, I have always been crazy about my birthday. I want the whole shebang, the whole kit, and caboodle, the whole 9...

"your brokenness is welcome here" Jordan Lee Dooley

Remember the fun and exhilarating feeling of doing something first as a child? I can still remember the first time I heard my brother...

Panic Attacks and Mantras

In August 2017, I experience my first panic attack. I have suffered from anxiety for as long as I can remember but never thought much...

Life Moments and the Brown Sweater

Do you have a go-to outfit? You always seem to pick something for a special occasion, the shirt you know fits, looks good, and you do not...

A TikTok video helped me turn my anger into ambition...

Unlike other diseases, no test can determine if a person has or does not have ALS. You do not get answers right away like in other...

From the desk of a mom reflecting on a pregnancy surrounded by ALS two years later

As Ashton’s second birthday approaches, I remember those beginning feelings of pregnancy, terrified and not for the everyday pregnancy,...

2021, Connecting, ALS and more

I've made a lot of goals for myself for 2021, and none of them are the typical Pinterest-worthy goals. This year, my main goal is to...

Grief on the random days

Lately, I've been reflecting on the holidays as Thor and Ashton's birthdays are quickly approaching, and I came to a realization about...

If you are here for the correct grammar, you are in the wrong place #itslife #ALSthoughts

If you are here for the correct grammar, you are in the wrong place #that'slife #ALSthoughts