The night my dad was diagnosed with ALS has ended up being the turning point of who I was and who I am today. I sat in the bath and googled everything under the sun about ALS. I hoped that one website would tell me something different from before, that this disease would not be terminal, that I would not be losing my dad.
As I continued reading, researching, and understanding more about ALS, I struggled to find where or how I could fit into my new role as the daughter of an ALS Warrior. The struggle grew with his prognosis, and I felt like I did not check any box.
I struggled to fit in with friends because most people my age are not dealing with how to deal with a Hoyer lift.
I struggled to fit in with the resources provided because those were geared more towards my mom.
I struggled to find that place, that person, that area of the world that understood.
The future I envisioned was drastically changing in front of me; I wanted others who saw the struggle in accepting that. I wanted to find something where I did not have to explain the details, the highest of highs and the lowest of lows were understood. I desperately wanted someone to tell me that it is okay to have bad days but to show me that there are really good days that need cherishing.
mom of a todder
in my twenties
a teacher turned stay-at-home mom
traveling 3+ hours a week to and from parents
WHEN I COULD NOT FIND THAT- I CREATED IT.
Sabrina Johnson Advocate was created to ensure that there would be a place, a person, and an area where people could come and say, “she gets it.”
For those that have felt lost, unheard, stressed, tired in ways you did not think were humanly possible, I get that.
Schedule an appointment with me, free of charge. Whether you are looking for support, resources, or guidance, let’s chat and see what I can do to help your journey be a little less bumpy.
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Get to know my family and the sticky gooey banana, honey, and peanut butter of a sandwich I have become as a Sandwich Caregiver.
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DONATIONS TO SABRINA JOHNSON ADVOCATE LLC
I started Sabrina Johnson Advocate LLC in hopes that one day as someone was googling the night that their loved one was diagnosed with ALS that they would come across this website and know they were not alone. Becoming an ALS Advocate, Mentor, and Consultant has sparked a fire in my heart, and I enjoy every step of being able to take my story and use that to help others.
Ton’s voice stopped so that mine could start. I know firsthand the financial strain of ALS has on a family, and it has been a mission of mine to never ask a family for payment for any services I may offer.
I also know that some people’s love language is to give, and I want to offer a safe place for people to donate to Sabrina Johnson Advocate LLC.
Whether you donate monetarily, share my website, or spread awareness about ALS itself, I thank you.
Together, we will live in a world where three little letters will not have such a huge impact on a family one day.